P08.13.A CaPaBLE - Assessing the Patient Generated Index Methodology in High Grade Glioma Patients and Caregivers

Abstract Background CaPaBLE tests the feasibility and acceptability of assessing quality life (QoL) using patient-, or caregiver-generated index (PGI/CaGI) methodology in patients with HGG their caregivers. Material Methods CaPaBLE, (https://www.isrctn.com/ISRCTN45555598), followed and/ caregivers up to 6 months. Standard measures for were EORTC QLQ-C30/BN20, CarGOQOL questionnaire. The QoL topics raised through PGI/CaGI have been coded most relevant domain from respective standard measure an initial assessment concordance. Results 36 patients, 24 recruited study; completing average 3 study timepoints. PGI CaGI generated 240 160 respectively. Patient concerns frequently Role Functioning; Caregiver mostly Burden. Other by such as driving sex life, future planning are not specifically questionnaires. Conclusion Nearly all mapped domains measure. However, almost half a minority included measures; whilst notable number at all. This raises questions regarding efficiency relevance questionnaires patient caregivers’ daily lives.